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Wednesday, June 1, 2011

Almost 2 months of blogging to do!

I have no clue where to start. I have neglected the blog, and now I have to remember 2 months of details to share. The boys were out of school for 2 weeks in April for spring break. We had a lot to go on with Easter, Church and finally our prayers were answer. Most of my close friends will know what I am talking about. It was a long fight (4 years) but everything is going good right now, and now there is relief in the picture. I started another infusion called Acterma. Seems like it is working so far. Besides having some minor allergic reaction, I think I can handle it for now. Its nice to be able to grab my hair brush without being in pain. We also bought a new house. We re happy and feel at home. We are living back in Waxhaw and it is wonderful! I love to be able to walk into town, walk the boys to the park or go shopping! We did our follow up visit with Karson's neurologist. She did dx him with Epilepsy with seizure tendencies. The best way to explain it is like this : when you try to build a fire, you have sparks. After so many sparks you finally create a fire. Well if Karson : he has different tendencies during the night : teeth grinding, sleep walking, sleep talking, rolling around, not getting a good nights rest. Well all of those are consider sparks, after while those sparks aka tendencies are going to become seizures. This is also the reason he had so many "febrile seizures". We started him on a new epilepsy medication this is his 4th in the last 4 years. We never like many of them b/c they did change his temperament. We are hoping this one works, and redo another sleep test next year to see where we are at. Darrel had a food allergy testing done to see why he was choking on his food. Come to find out he is allergic to BEEF(yes guys, he is allergic to cow. Which includes Steak, hamburgers, hot dogs and other things) also, pepper, apples, peaches and eggs. So we are doing our best to eliminate or at least cut down on the amount of foods he is allergic too. We are now settle into our house, and the boys are almost of school. Everyone is doing great right now. Can't wait to see my babies graduate from Pre-school!